Friday, July 31, 2009

Trying to think of something to blog about

The past few weeks I have been focused on these crazy tremors so I have neglected everything. I have not called my friends like I should. I have not been swimming. I have not even been walking outside.

Last night was day 3 of taking the Zonegran that is suppose to help with my tremors and should also help with my headaches. I am still reading and doing research on it. It will take about 2 weeks to get in my system good. In a few days I am suppose to go up to another dose but I may hold off. I have a fear of side effects. Right now I am not seeing many from it. I did get a bit dizzy in a swivel chair but that could have happened normally. I guess I am looking for side effects to see if the medicine might be working.

I have been having more headaches ( well not more...I always have them...more pain) thanks to all the rain we have been getting. Hopefully the Zonegran will help that some too.

Pepper is getting a hair cut this morning. My groomer comes to the house. I have used him or his wife that passed away since 1980. I hope to get a picture of him before he gets the ribbons out. Well actually my Dad takes them out. I think they are too cute but my Dad thinks it makes him look like a sissy...lol He is a poodle most people think all poodles are girls anyway. As long as Stacey has cleaned for me she still calls Pepper a pretty little girl. He growls when you say girl or sissy so it is a quick reminder...

I don't have anything new to report. I am super excited September is now Hydrocephalus Month.

I'm just tired and grumpy. I hope to find some new hydro news or some coupon links when I feel better. My mom has figured out e-bay coupons. We have all kinds of coupons to eat out on coming. Kind of like getting presents in the mail

Wednesday, July 29, 2009

**IMPORTANT ANNOUNCEMENT**

AT 3:38pm,
H. RES 373 Passed by a voice vote!
September is officially
NATIONAL HYDROCEPHALUS AWARENESS MONTH!
Thank you PHF, Inc, Congresswoman Bachmann, Congressman Lance, the 88 other Co-sponsors, the rest of the U.S. House of Representatives and everyone who made this a reality! WE DID IT!!!!

Zonegran®

I have been really worried wondering what was happening with all the tremors I have been having. I could control them with the medicine I was trying to stop taking. Well at least try not to take it every day.

I was really worried that I was having seizures.

Got to Dr. P's office and saw a van outside that had Asheville Elevator on the side. I had not taken the medicine to calm the tremors so Dr. P could see exactly what I was trying to explain. Sure enough no elevator. I have to tell you it was an interesting walk up the steps. My legs were trembling. I was shaking. Oh I have to tell you too I am afraid of heights. And here beside me come these 3 elderly people. My mom told them to go ahead but they insisted on staying to encourage me.

It is crazy in just a matter of days I am again having to use my cane and feel totally helpless to the shakes that have messed with my coordination,my balance and my pride.

I wont go through my entire appointment with you how I was totally stressing on what was happening to me. Was this little pill I had been taking at night really been hiding all this. Apparently it had.

I just knew I was having some sort of seizure. But Dr. P and his assistant both tell me not to worry it is not a seizure. They called it just as I described it tremors. He said it could be from the surgeries, the hydrocephalus or really anything. He really thought I inherited it from another family member but we have no one in the family with this issue.

So the plan is to try a new medication that is prescribed most often for seizures and migraines. But also with patients with MS that have tremors. It is a cousin to Topamax which I have taken before. To help my constant headaches. But with the faulty shunts and all it was hard to tell if I was having side effects from the Topamax or the shunts.

The medicine is called Zonegran® It is not suppose to have as severe of side effects as Topamax. It will take about 2 weeks for it to start working. But I am looking forward to seeing it's results.

I have been doing a bit of research on it this morning and going to do a bit more. I always check out everything because I have such crazy effects from new medicine.

Monday, July 27, 2009

I need to do something productive

I have neglected my blog, my groups, all my online hydrocephalus boards. I honestly don't have the patients to sit here more than a couple of minutes. I've just stayed inside being depressed making hundreds of notes of everything I take. Everything I feel. I have attempted to go swim but end up turning around and coming home. Because if I do get in there I end up breaking down crying because I just feel so bad and don't understand what is happening.

Of course my first thought always goes to shunt failure or shunt infection. I have ruled this out since my headaches are not getting worse.


So after a month maybe 2 of this craziness I contacted an online hydro peep I have learned everything from about my condition, Liz...Or as she goes by online Lizard. Since 2003 when I discovered I had a name for my condition. I have blog hoped and tried to follow her to every new hydrocephalus board I could find her on. Not always directly chatting but watching and listening to her advice to others.

I finally got desperate and contacted her directly about what was happening with me. I honestly did not want to post about what was happening because I did not want to have to tell about the night medicine I had been taking because I just wanted to limit who knew I had taken it.

So here is what has been happening. I have for a good while taken a medicine to sleep. Months probably years since all the stress of my condition has been at a level 110%. I felt like the sleeping medicine was making me have a hang over the next day although it was not suppose to stay in your system. So I switched to a relaxant type medicine. Which I though was good because I was not walking in my sleep and the hang over did not seem to be happening.

The last month and a half or longer something else has been happening. Which I have thought nothing much about because it have just been 7 months since surgery and sometimes I need that much time to full adjust. Then I also thought well I have been more active so my body is needing more sleep. And then last excuse was I have always had trouble with sleeping. Which I know now comes from my hydrocephalus.

So I would sleep 6 to 8 hours at night get up a couple of hours then go back to sleep for as much as 4 or 5 hours. When I woke up in the evening I felt horrible. My excuse was sleeping in the middle of the day. What I felt was a major low sugar feeling like a shaking twitching like feeling. I had journaled it but really thought it was because of my crazy sleeping.

Some days if I had Stacey coming or swimming I would wait til I got home in the evening to fall asleep. But fought the sleepy feeling the whole day. After playing this sleeping game for months I discussed with my mom that my nerves were just on edge because I felt so bad and just wanted to cry because I felt depressed and so tired. I suspected the night medicine and decided to quit taking it. I did not figure it would be a big deal because my pain management had had me at one time taking it 3 times a day when I was having super fetal position pain and was severely sick with a faulty shunt. I only took a piece sometimes a whole before bed to help relax.

The morning after I did not take it was a Sunday. I felt awake actually went outside and worked in my yard some. I don't know if it happened that day. But Monday, last Monday I was in my water therapy class and was having trouble with my left hand and arm doing the exercises. My coordination was really off and I felt shaky. I had just about quit needing a cane because I was steady enough to balance without it. But I was needing it back because my left side felt weak and shaky. Well, I felt shaky low sugar feeling all over.

I thought maybe I was having withdrawals from stopping the night medicine. So even with the fear that it would totally knock me out. I took a half. And sure enough it helped. I was terribly sleepy but this crazy feeling went away. So I decided it was withdrawals. The feeling returned the next day around 1 to 2 o'clock. It happened everyday. I can not be having withdrawals this long. Anyway I had stepped down off of it. So I thought it was the sleeping medicine. So the next night I woke up a lot but did not take anything. Then I woke up feeling the shakes.

I messaged about what was happening on one of the support boards. I got a reply that it might be seizures. Which is stressing. I have had 2 or 3 confirmed seizures. But it has always been because of a medicine that a side effect was seizure.

But I can take small pieces of my night med through the day and control this feeling. Not this medicine but one like it is given in the ER to help control seizures.

So tomorrow I'm off to see Dr. P to see what he thinks. He has wanted me on seizure meds for a long time to help control my headaches. But each time they just drugged me up so bad I could not function. But I am hoping it will be a better result this time. I have a shunt that is not programmable and I am the most stable I have been in over 7 years. I am hoping a low dose will help this craziness.

I am 99.9% sure I am having some kind of seizure activity. I'm trying to be positive and be glad it is not the shunt. So tomorrow is the day.

I am looking forward to stopping the night medicine. Because it is making me so tired and I'm depressed from it too. This is the longest I have sat at my computer in a good while. Even thought I have got up several times to just get away because just sitting here is getting on my nerves so bad.


Thursday, July 23, 2009

Just in case you were wondering...

I was born on a Tuesday and since my birthday...
I've been living for 34 yearsI've been living for 415 months
I've been living for 12,630 daysI've been living for 303,138 hours
I've been living for 18,188,298 minutes
I've been living for 1,091,297,928 seconds
My heart has beaten more than 1,273,180,860 times!

Wednesday, July 22, 2009

A tribute To John Holter and his "Holter Valve" Shunt.

A tribute To John Holter and his "Holter Valve" Shunt.
A generation of us are alive today because of his work and his own personal tragedy.
Thank You John Holter, You will never be forgotten.
Read the Story here

Obituary
He was a mechanic, gifted at saving lives
John W. Holter, who invented a shunt that won worldwide acclaim for helping hydrocephalics, has died. He was 87.By CRAIG BASSE, Times Obituaries EditorPublished December 27, 2003

ST. PETERSBURG - John W. Holter was not a doctor when he invented a revolutionary shunt that drained water from the brain. In fact, he had never gone to college.
But in 1956, with his infant son suffering from the effects of hydrocephalus, the trained mechanic focused his creative energy and skill with his hands on solving a problem surgeons had been unable to overcome.


Mr. Holter's shunt went on to save hundreds of thousands of lives, and he went on to become a celebrated medical inventor and philanthropist, who had homes in St. Petersburg and Lakeland. He died Monday (Dec. 22) in Devon, Pa., of a heart attack. He was 87.


He recently suffered a stroke and was in ill health, his nephew Eric Holter said.
Mr. Holter created a variety of medical devices, including an apparatus to treat cervical cancer, kidney dialysis pumps, artificial heart valves, finger tendons, even artificial bladders.


But his most famous creation was the first successful shunt valve for water on the brain that was a departure from previous, metal fittings that doctors had invented, and used a simple rubber design like a nipple on a baby bottle.


"I think it was worth the Nobel Prize," Pennsylvania neurosurgeon Eugene B. Spitz said in 1993.
Mr. Holter was a mechanic, or, as he jokingly called himself, a "knuckle-knicker" who was working for Yale and Towne, a company that made door locks, at a research lab in King-of-Prussia, Pa.


He threw himself into a quest for a new shunt valve after the birth of his son, Charles Case Holter, or Casey, as they called him.


Mr. Holter and his wife, Mary, had tried for 10 years to conceive a child, but their boy was born with meningomyelocele, a sac on his back filled with nerve tissue and bits of spinal cord.
Doctors could handle the sac, but one of the side effects of that condition was hydrocephalus.
Mr. Holter's breakthrough device allowed his son to live until shortly before his fifth birthday, when he died from complications related to an episode of cardiac arrest he suffered while an infant.


While doctors in America devoured Mr. Holter's new invention, he kept Casey's memory alive by taking the shunt valve to medical meetings in other countries, providing them free to those in need.


In 1976, the University of Sheffield in England awarded him an honorary doctorate for the development of the shunt valve. He became the first nonmedical member of the Society for Research into Hydrocephalus and Spina Bifida.


In the final years of his life, he lived at his waterfront apartment on Snell Isle. He paid regular visits to his mother, Favian E. Holter, at a St. Petersburg nursing home until her death on April 27, 1996. She was 102.


Between 1989 and 1993, he donated more than $600,000 to local charities.
"I'd rather do it while I'm alive and see it do some good," he said in 1993, "rather than have an estate and have the lawyers fighting over it."


In 1991, he gave a $100,000 charitable annuity to the United Way of Pinellas County. The gift, in the form of stock, was to transfer to the United Way upon the deaths of Mr. Holter and one other person, whom he declined to name.


"I don't believe in leaving my money to Uncle Sam, and I'm not interested in owning 110-foot yachts," said Mr. Holter.


He is survived by three nephews and a niece.
- Information from Times files was used in this obituary.

HARRIS TEETER is doing SUPER DOUBLES

HARRIS TEETER is doing SUPER DOUBLES again starting July 22 through the 28th.

Tuesday, July 21, 2009

Pediatric Hydrocephalus Foundation, Inc. Introduces Two State Chapters

Pediatric Hydrocephalus Foundation, Inc. Introduces Two State Chapters
To members of Pediatric Hydrocephalus Foundation


Kim Carvalho Illions
Today at 6:53pm
Reply
For Immediate Release Contact: Kimberly Illions Tuesday, July 21, 2009 (732) 634-1283 www.HydrocephalusKids.org kim@hydrocephaluskids.org

Parents From Missouri & California Join the PHF, Inc. In Battle to ‘Fund a Cure’ for HydrocephalusWoodbridge, NJ – The Pediatric Hydrocephalus Foundation, Inc. is pleased to announce and introduce their first two State Chapters to the PFH, Inc. family; Missouri & California.California State Director Bridget Roberts wants to give back and help fund a cure for Hydrocephalus, “My son Aiden developed Hydrocephalus within his first few weeks of life. His first shunt was placed at 5 weeks old. Sitting in the ICU at Children’s Hospital Oakland several weeks ago made me look around at all of these children suffering from the same thing Aiden was at that very moment and I realized that these little children big and small are my heroes.”

The new Missouri State Director, Shannon Sommers & her husband Jason, share a similar story; “Our daughter Carly Jade is a thriving, adorable 4-year old! Doctors diagnosed her with Hydrocephalus when I was just 18 weeks pregnant. In a matter of minutes, our lives changed. My husband and I were unfamiliar with the condition. We had many questions, but Doctors had few answers. I needed someone, something to reach out to, but the resources weren't there, until now, thanks to the Pediatric Hydrocephalus Foundation!”

“We are so thankful to be a part of this incredible organization. Our goal here in Missouri is to educate families and doctors that having Hydrocephalus is okay. I want everyone to see Carly's beautiful face and know everything will be okay. And with the help of the community we will fight with all our might to fund a cure!”

Kim Illions, the President of the Pediatric Hydrocephalus Foundation, Inc. and mother of a 4 year old boy with Hydrocephalus, added that "Our vision at the PHF has always been to "fund a cure for hydrocephalus" and to spread that funding across the country. We are so proud and excited to welcome our two newest chapters, Missouri and California, and we look forward to raising money, awareness and advocacy for Pediatric Hydrocephalus with these two great states!"The mission of the Pediatric Hydrocephalus Foundation is to educate the community by raising the level of awareness about this incurable brain condition.

The PHF will also provide support to the families, friends and children who are diagnosed with Hydrocephalus. The PHF will raise money for and work with the medical community in searching for a cure and additional treatment options for those with Hydrocephalus.


Additionally, the PHF will advocate on behalf of the members of the Hydrocephalus community and work with policy makers at the State and Federal level to raise awareness and push for more research and support in our fight against Hydrocephalus. The PHF will be holding fundraising events to accomplish the goals stated above.

Monday, July 20, 2009

Triple Coupon event

July 19Th 2009 - July 25Th 2009 Ingles is having triple coupon...
Be sure to check web site for coupon policy

Momma is 29 again this year!!!


Sunday, July 19, 2009

Death at Denver hospital

denverpost.com


denver and the west
Review follows patient death at Denver hospital
A Denver hospital must meet strict standards after "chaotic" incident.
By Karen AugeThe Denver Post


Just before midnight May 14, Hilary Carpenter logged on to her My-Space page.
"Surgery in the morning :-/ ; nervous to say the least," she wrote. "Thoughts and prayers are more than welcomed."
The next morning, the 25-year-old Arapahoe Community College arts student checked into the Colorado Orthopaedic and Surgical Hospital in Denver to have a shunt valve in her brain replaced.
Five days later, she was dead.
As a result of her death, the state health department took the highly unusual step of ordering the hospital, which opened in September, to stop accepting patients except in emergencies.
State health officials say they are reviewing a plan COSH submitted Wednesday for correcting the numerous problems the state found when it investigated Carpenter's death.
Reached by phone Thursday afternoon, COSH chief executive Chuck Elliot said he was in a meeting and unable to talk about the investigation.
Under an agreement between state officials and COSH management, the hospital must, among other things, improve its drug monitoring, hire a "sufficient number" of board-certified emergency physicians, provide the state with daily reports on emergency-room staffing along with emergency department patients and their conditions, develop a plan for handling emergencies, and train staff in those procedures.
The agreement is in effect until Aug. 1.
Under it, COSH may begin admitting elective-surgery patients again only after more state inspections and state approval.
Drug "incorrectly" given
According to a report by state health investigators, Carpenter complained of severe headaches and was vomiting the morning after her surgery.
One of two registered nurses for seven in-patients who were hospitalized that morning called a physician on duty, who prescribed a drug for nausea and pain.
Carpenter was given Demerol, but according to state investigators, "the medication was administered incorrectly, with the wrong dose and wrong route."
When the nurse checked on her 15 minutes later, Carpenter's heart had stopped.
What happened next, as state health department investigators described it, was utter confusion.
"A crash cart was . . . brought to the patient's room, but staff were unfamiliar with the layout of its contents, and there was some initial confusion about where things were located," according to the state report.
The doctor on duty became frustrated with the situation and yelled at staff, exacerbating a situation the state inspectors described as "chaotic."
Poor emergency training
COSH has an agreement with the adjacent Exempla St. Joseph for the larger hospital to respond when needed in emergencies. However, the state found that when COSH personnel called them, St. Joseph staffers had trouble navigating the hospital and finding Carpenter's room.
Eventually, about 20 minutes after Carpenter was found not breathing, hospital staff called 911 and summoned paramedics to the hospital.
She was taken to St. Joseph and remained there until she was removed from life support May 19.
State investigators wrote that COSH did not have adequate staff on site the morning Carpenter went into cardiac arrest and that the nurses and others who were there hadn't been sufficiently trained in how to respond to emergencies.
In addition, the report found that nurses on duty didn't call Carpenter's surgeon, and nobody checked whether her headaches and nausea were caused by a malfunction in the new shunt or some other surgery-related complication.
Since her death, friends and family have visited Carpenter's MySpace page, writing of her physical struggles, her spirit and the shock of her death.
The New Hampshire native "found HOME in Colorado," one person wrote. "She truly shined her brightest here. . . . God rest her beautiful soul."
Karen Auge: 303-954-1733 or kauge@denverpost.com

Blue Spruce part 2...THE END

I have learned a valuable lesson with organic pest control. It does not kill insects or pest you are trying to rid. I really wanted to save my tree since I had it for so long. I have used the spray day after day for the past week and the gross sawfly larvae that has invaded my tree and it is dieing.

I'm glad I have a picture of it's better days. In these pictures it just looks totally horrible. I have pictures of these discussing pest. But I have had night mares over them just being absolutely disgusted by them.

I made the discussion to put Mr. Spruce out of his misery. Plus I have a hugh fear of this spreading to other trees.
I never knew an insect would or could harm a pine tree of any kind. Because as much as I love them it irritates me getting pricked with sharp needles and the pine sap you almost have to use paint thinner to remove.
The larvae consume host needles. It says in my research that they generally feed in large groups. In every square foot of the spruce there are hundreds.



I really had not realized how big my tree was and how much space it took from my front yard. It has been there ever since my home. But wow is it ever a change to have the spruce remover. I have opened up the front of my house and can see all the way from my yard to the road up at my parents.





Friday, July 17, 2009

Rose colored Sun Glasses

Here is a super cool way to help those bothersome headaches. This applies to anyone that has had head surgery or sufferers from migraines. If you wear rose colored sun glasses it will help the headaches.

Florescent lights in stores bother me to. So yea, here I go through the grocery store in my rock star rose sunglasses. But it totally works.


Pepper's 2nd trip to the Dr. this week

Last Wednesday or Thursday I noticed Pepper's left eye looking foggy and a bit infected. So I started using an eye wash and putting antibiotic drops I had in about 3 times a day. Probably should have taken him Friday to the doctor but thought maybe I just had not give the antibiotics long enough to work.

Monday it looked worse than ever so I took him to see Dr. Scott. I had wondered if it might be an ulcer and sure enough Dr. Scott confirmed it was. He gave more drops with instructions to give them 6 times a day. Wow!!! But I am a bit worried with him being diabetic and all that it may not be healing enough or rather fast enough. So he is seeing Dr. Scott again here in just a bit to see if we need more aggressive treatment.

My mom mentioned he may need a stitch in the area but the prick point is in the pupil. I'm not sure they can stitch that part of the eye.

I have has 3 eye surgeries and still have the scars and they did place stitches but I don't know about in the eye part.

I had a lady ask me what pocked him in the eye. I told her for some unknown reason Pepper refused to tell me. So I think he is trying to protect someone or afraid that they will do more than poke him in the eye next time.

I want to start a "No Bulling Campaign"

Hey Supermom!!!I've got my own campaign going.

Update: His little eye is healing but Dr. Scott removed a fissure off the eye.

Thursday, July 16, 2009

A way to prevent/cure hydro? article

I recently saw one of my hydro peeps post these articles on The Brain Talk support board.
I feel it is something important for all women to be aware of. It is suggested that all women of child baring age take folic acid. But this is another great reason to take it.

Thank you Lauren88 from the UK. You can find her there at Brain Talk she is a member and post often.

A way to prevent/cure hydro? article


Hi all,
Stumbled across this http://news.bbc.co.uk/1/hi/health/7950590.stm the other day and wondered what your thoughts would be? It was a surprise to me as though folic acid is renowned now for preventing spina bifida, I'd never heard of anything that might prevent hydrocephalus, aside from reducing premature births/related issues e.g. oxygen deprivation, by cooling the baby's brain http://news.bbc.co.uk/1/hi/health/3682513.stmWhat are your thoughts? Are there (m)any posters with congenital hydro here? any particular thoughts? I know in other online communities that I'm aware of some people are opposed to things like folic acid to prevent spina bifida etc because some people regard it as effectively saying 'people with spina bifida shouldn't be born.' Because mine was caused by an IVH and not a 'birth defect' I'm not sure how much effect folates would have had on my outcome, but I'm interested to read this and to see what other people think. Personally I'm a little uncomfortable with the term 'birth defect,' not just because it's not accurate for many people with hydro but because of its connotations - I don't see myself as 'defective'! Personally, the position I'm in right now and only right now (we all know how quickly right now can change) my ETV is controlling my hydro so right now I think 'if it ain't broke don't fix it.' And realistically this is obviously a long way off, and like anything, it's not going to be foolproof - part of the reason cases of hydrocephalus are increasing is surely because there are so many ways of 'getting' it. Also, because I basically have had hydro since birth (my IVH was at 8 hours old) it is part of my identity - I don't know any different and also it has had a huge impact on my life. What happened (hemorrhage) happened and I can't change that for me. But if it could be changed for other people... I suppose in its current proposed form as a pill, those who felt strongly about not 'interfering with nature/letting God decide' (insert/delete as appropriate) for their children, could choose not to take it/give it to their children. I think part of the controversy surrounding folic acid supplements for some people with spina bifida is because it's been proposed to add folic acid to flour/bread http://news.bbc.co.uk/1/hi/health/4878448.stm and that would take the choice away. I would venture to say that at this time my belief would be that 'people should not be born with hydrocephalus' (if it can be prevented, not all cases can) is NOT the same as 'people with hydrocephalus should not be born.' What do others think?Disclaimer: no offence intended by this message.
__________________Hi I'm Lauren from the UK. I have CP and hydrocephalus (done the gauntlet, 1 shunt, 2 shunts, back to 1 shunt and now an ETV) as a result of an IVH following birth at 26 weeks gestation. Both traumatic at times but they make me who I am. Reasonably stable now except for long-term trouble sleeping due to pulsating sensation when lying down but taking one day at a time and doing well.

Tuesday, July 14, 2009

7 People in custody in slaying of FL couple

7 people in custody in slaying of Fla. couple
By MELISSA NELSON and BILL KACZOR Associated Press Writer The Associated Press
Tuesday, July 14, 2009 1:21 PM EDT

This 2005 picture shows Byrd and Melanie Billings with their children, 10 adopted... (AP Photo/The Pensacola News Journal, Karena Cawthon)
More US News[x]


PENSACOLA, Fla. (AP) — Masked suspects, some dressed as ninjas, stole a safe and other items during a deadly break-in at the sprawling Florida Panhandle home of a couple known for adopting children with special needs, authorities said Tuesday.
Melanie and Byrd Billings were shot to death Thursday in their nine-bedroom home. Escambia County Sheriff David Morgan hugged their sobbing adult daughter, Ashley Markham, at a press conference Tuesday to announce that three more people had been arrested, bringing the total to seven.


"It is my honor today to tell you, Ashley, and your family, we have found them and they are in custody," Morgan said.
Investigators had said previously that there were many motives for the crime, but prosecutor Bill Eddins said Tuesday that robbery was the main one. He would not say what was in the safe or what else might have been taken from the house.
Nine of the couple's 17 children were home at the time and three saw the intruders but were not hurt.


Morgan said investigators were still looking for at least one more person in the case and at least one of the suspects in custody may have done work at the Billings home. He has previously said the suspects had no direct connection to the victims.
Several of the suspects were day laborers who knew each other through either a pressure washing business or a car detailing group, Morgan said.
The arrests started Sunday with 56-year-old Leonard Gonzalez Sr., who was originally charged with evidence tampering but will be charged with murder, authorities said. He is accused of driving a red van seen on surveillance video pulling away from the Billings home and then trying to paint over it.


His son, 35-year-old Leonard P. Gonzalez Jr., was also arrested Sunday along with day laborer Wayne Coldiron, 41. Both were due in court Tuesday to face murder charges.
Another day laborer, Gary Lamont Sumner, 31, was arrested on a murder charge in a nearby county Monday after he was pulled over in a traffic stop. Morgan said investigators have placed Sumner at the scene, though he would not provide details.
Three more people were arrested Tuesday — a juvenile whom police did not identify; Frederick Lee Thorton Jr., 19; and Donnie Ray Stallworth, 28, who was arrested in Alabama but lives in Florida.


The break-in was captured by an extensive video surveillance system the Billings used to keep tabs on their children.


Surveillance video showed three armed, masked men arriving in the red van, entering through the front of the house and then returning to the vehicle. Others dressed in what the sheriff called "ninja garb" went in through an unlocked utility door in the back. They were in and out in under 10 minutes.


"I think you'll find this particularly chilling and here's why: We have a team that enters at the rear of the home and another that enters at the front of the home," Morgan said. "It leads me to believe this was a very well-planned and methodical operation."


Morgan said, however, that there was no indication anyone had unlocked the door for the intruders, adding that people in the community felt comfortable leaving their doors unlocked.
The couple owned several local businesses, including a finance company and a used-car dealership. They lived in Beulah, a rural area west of Pensacola, near the Alabama state line, in a house set deep in the woods. They had 17 children in all — 13 of them adopted.
Tips from the public led police to the van on Saturday.
———
Associated Press writer Tamara Lush in Miami contributed to this report.
Copyright 2009 The Associated Press. All rights reserved. This material may not be published, broadcast, rewritten or redistributed.

http://www.couponclippingcrew.com/


I have found a new coupon clipping site. Of course for a small fee.
Now just to find a site to sort them for me too.

Monday, July 13, 2009

Coupons,Sales and big deals...

Has anyone noticed I'm kinda board with the coupon thing. Actually not board just it is a big let down after a big triple coupon event. I am board with hunting and clipping and sorting. Especially when I can pay a few cents and have them mailed to me in 3 days. I like buying off e-bay and finding select coupons off www.theCouponMaster.com and www.thecouponClippers.com . Plus on site coupons for specific items.

Lately all the good deals I'm seeing is on back to school items. Sorry if I go back I'll go back kicking and screaming.

I hope to find my coupon bug again soon. Actually I have it just waiting for some great triples to come.

Hydrocephalus Awareness

Michele Bachmann pushes hydrocephalus awareness
By Joe Kimball Published Mon, Jul 13 2009 2:19 pm
It might not get the Larry King-style of publicity that many of her proposals and statements receive, but Congresswoman Michele Bachmann has introduced a resolution designating September as National Hydrocephalus Awareness Month.
Hydrocephalus is a neurological condition that results in excessive accumulation of fluid in the brain.
The House Committee on Oversight and Government Reform has passed it, she reports, and it could go to the full House next week.
The resolution also encourages a partnership between the federal government, health care professionals and patient advocacy groups for further research into the diagnosis and treatment of the condition and its impact on families.

Team Hydro

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'Team Hydro in the news'
Click here to DONATE and make a difference
Last summer, brothers Peter and Sam Finlayson were joined by two friends (fellow members and alumni of the Stanford University water polo team) and created a unique opportunity to raise funds for and awareness of hydrocephalus. They joined up with Sharkfest, an annual endurance event where swimmers brave the icy, sea-lion and shark infested waters of San Francisco Bay to swim the 1.7 miles from Alcatraz to San Francisco. TEAM HYDRO swims in honor of the brothers’ sister, Kate Finlayson, who lives with Hydrocephalus. In 2008 they raised awareness and more than $10,000.

See the video


Check out their blog.
Though the ranks of TEAM HYDRO 2009 have grown to nearly 2 dozen members, their goal remains the same: raise awareness and funds for the Hydrocephalus Association. On August 15th at 9am TEAM HYDRO will take the plunge from Alcatraz Island and hope to wash up on the shore of Aquatic Park between 9:30 and 10am!


HOW TO PARTICIPATE
Donate – A major goal of TEAM HYDRO is to raise funds for the Hydrocephalus Association (HA). 100% of donations will be given to the HA and used to conduct research and perform advocacy work on behalf of the 1 Million Americans who suffer from Hydrocephalus.
CLICK HERE TO CONTRIBUTE.
or, send check/money order to:
Hydrocephalus Association
870 Market Street, Ste 705
San Francisco, CA 94102
and indicate "Sharkfest 2009"

Publicize -- The other goal of TEAM HYDRO is to generate awareness of the condition hydrocephalus. Tell your friends about TEAM HYDRO and our cause. Forward this link to friends, family, and co-workers. Show off our cool video. Write letters to your local newspaper, television, and radio stations telling them about our efforts. Be creative. Do all you can to SPREAD THE WORD!

Cheer -- We would love to have you join us on August 15th at Aquatic Park. The pre-race festivities will begin around 8am but the real party starts around 9:25am when the first finishers start to emerge from the deep. Come cheer, enjoy the atmosphere, and support TEAM HYDRO!!

Swim -- If you are already signed up for Sharkfest 2009 and would like to join TEAM HYDRO email info@teamhydro.org to learn how to join in the fun. If you are not already registered for Sharkfest 2009, unfortunately registration is already closed. Please help by Donating, Cheering, and Publicizing in 2009…and mark your calendar for 2010!


http://www.hydroassoc.org/help/team-hydro

Ask a stupid question

Yesterday I was buying a 2 large bags of Purina dog chow at Walmart, for my dogs Winston, Chief, Gus, and Maximus. I was about to check out when a woman behind me asked if I had a dog. What did she think, that I had an elephant?

Since I had little else to do, on impulse, I told her that no, I didn't have a dog, and that I was starting the Purina Diet again, although I probably shouldn't because I ended up in the hospital last time. On the bright side though, I'd lost 50 pounds before I awakened in an intensive care ward with tubes coming out of every hole in my body and IVs in both arms.I told her that it was essentially a perfect diet and that the way that it works is to load your pockets with Purina nuggets and simply eat one or two every time you feel hungry and that the food is nutritionally complete so I was going to try it again. (I have to mention here that practically everyone in the line was enthralled with my story by now.)

Horrified, she asked if I ended up in intensive care because the dog food had poisoned me. I told her no; I had stopped in the middle of the parking lot to lick my butt and a car hit me.I thought the guy behind her was going to have a heart attack, he was laughing so hard!WAL-MART won't let me shop there anymore

Invisible Disability Community

While searching for blogs a few days ago for people with hydrocephalus. I found a very sweet lady's blog that has chronic fatigue and other issues. I was looking around on her page and saw she was a member of a group called" Invisible Disability Community." So of course I had to check it out. It makes me think of a myspace foe people with disabilities.

I have found many disabled friends on myspace and facebook. But this page is very different. When you make a friend you can instantly research their condition and understand their condition better.

I want to invite everyone of my disabled friends to come join and add me as a friend. I have several friends with multiple sclerosis so I was looking at the moderators page. There is probably 50 to 75 links for MS sites. This is a growing community and I think it will be a positive place for me and many others.

Please come check out Invisible Disability Community http://invisibledisabilities.ning.com/

Sunday, July 12, 2009

Who gets Hydrocephalus?

Who gets this disorder?

The number of people who develop hydrocephalus or who are currently living with it is difficult to establish since there is no national registry or database of people with the condition. However, experts estimate that hydrocephalus affects approximately 1 in every 500 children.


What causes hydrocephalus?

The causes of hydrocephalus are still not well understood. Hydrocephalus may result from inherited genetic abnormalities (such as the genetic defect that causes aqueductal stenosis) or developmental disorders (such as those associated with neural tube defects including spina bifida and encephalocele). Other possible causes include complications of premature birth such as intraventricular hemorrhage, diseases such as meningitis, tumors, traumatic head injury, or subarachnoid hemorrhage, which block the exit of CSF from the ventricles to the cisterns or eliminate the passageway for CSF into the cisterns.


What are the symptoms of hydrocephalus?

Symptoms of hydrocephalus vary with age, disease progression, and individual differences in tolerance to the condition. For example, an infant's ability to compensate for increased CSF pressure and enlargement of the ventricles differs from an adult's. The infant skull can expand to accommodate the buildup of CSF because the sutures (the fibrous joints that connect the bones of the skull) have not yet closed. In infancy, the most obvious indication of hydrocephalus is often a rapid increase in head circumference or an unusually large head size. Other symptoms may include vomiting, sleepiness, irritability, downward deviation of the eyes (also called "sunsetting"), and seizures. Older children and adults may experience different symptoms because their skulls cannot expand to accommodate the buildup of CSF. Symptoms may include headache followed by vomiting, nausea, papilledema (swelling of the optic disk which is part of the optic nerve), blurred or double vision, sunsetting of the eyes, problems with balance, poor coordination, gait disturbance, urinary incontinence, slowing or loss of developmental progress, lethargy, drowsiness, irritability, or other changes in personality or cognition including memory loss. Symptoms of normal pressure hydrocephalus include, problems with walking, impaired bladder control leading to urinary frequency and/or incontinence, and progressive mental impairment and dementia. An individual with this type of hydrocephalus may have a general slowing of movements or may complain that his or her feet feel "stuck." Because some of these symptoms may also be experienced in other disorders such as Alzheimer's disease, Parkinson's disease, and Creutzfeldt-Jakob disease, normal pressure hydrocephalus is often incorrectly diagnosed and never properly treated. Doctors may use a variety of tests, including brain scans (CT and/or MRI), a spinal tap or lumbar catheter, intracranial pressure monitoring, and neuropsychological tests, to help them accurately diagnose normal pressure hydrocephalus and rule out any other conditions. The symptoms described in this section account for the most typical ways in which progressive hydrocephalus manifests itself, but it is important to remember that symptoms vary significantly from one person to the next.

MedicineNet.com

Saturday, July 11, 2009

National Hydrocephalus Awareness month

Battling Back Against Hydrocephalus: H. Res 373: "National Hydrocephalus Awareness Month"
To members of National Hydrocephalus Awareness Month Resolution


Michael Illions

Today at 7:03am


Just returned from DC where Cole was in a video shoot with Congresswoman Bachmann, Sponsor of H. Res. 373 and our Congressman from New Jersey, Leonard Lance.This video will be sent to all members of Congress in hopes of receiving support for H. Res 373; designating September as "National Hydrocephalus Awareness Month" The vote should be coming up in the full House in the next week or two!!Thank you all for your phone calls to the various members of Congress. We will realize our goal THIS summer!!!The video appears on the Group page, or you can go here to view:http://www.youtube.com/hydrokids

Friday, July 10, 2009

Cow Appreciation Day

http://www.chick-fil-a.com/#home

Take a look today you can get a free meal at Chic-fil-a buy dressing like a cow. If you don't have a costume be creative. Check out the site for details.

http://www.cowappreciationday.com/

Wednesday, July 8, 2009

Daily life with hydrocephalus for me

Not sure if you noticed. But I try not to blog all the time about my illness. But with joining a new online group I think it is important for them to understand my illness. So far I am the only one I have found in the group that has hydrocephalus. I hope to spread the word to my hydro peeps and get some of them here.

Not all people with hydrocephalus have the same pain and problems I do. But still many do. Not everyone with this condition has the same complications. With reading my story I know you know I only found out I had a condition 20 years after having my first surgeries.

But I look back now and see systems I had but never could get a doctor to say anything other than I had a nervous stomach. Each morning I would wake up sick to my stomach and usually with a light headache. This I had all through school until I was 14 or 15. One day I woke up with no headache. So never knew the reason for that just thankful. Another think during full moon my balance was really off. I would fall up steps and trip for no reason. One more biggie is I have never had a since of direction. All these are systems of my condition. But
I always just thought because I had to have surgery it just cause my pain.

But now that I know what I have and why. I journal my pain and different feelings or systems because the smallest issue could mean I could be going into shun t failure. With living for nearly 20 years not knowing my condition I went through many needless hospital stays and crazy test for something that was there the whole time.

After my last 7 years of complications I have had things happen like the wrong type of shunt and a faulty shunt for 14 months. I am now the most stable I have been in a long time but still somethings may never completely go away. I am not bitter over the mistakes I just don't want it to happen to someone else.

My brain tumor was in the cerebellum and I had radiation that both cause balance issues and nerve damage. But because my condition is like the group I just recently joined My issues are indivisible to most people. But I deal with daily headaches. I do the pain scale from 1 to 10 but I describe my headaches in more like 3 levels. The usual, the bad, and the fetal position.

I think because of my nervous system being damaged. ( in which way I am not sure) I have body aches and pains that when talking to friends with fybromalgia, multiple sclerosis and other nerve disorders. Our aches sound similar.

Often on rainy days I ache and have the worse headaches. And the full moon still bothers me too. I have found connections with different friends when I describe a pain and they can relate to my feeling.

I have lived my last few years obsessed about my condition and letting it control everyday of my life. I still have the pain. Still feel bad but I am trying to fight my condition with constant thoughts with the things I use to enjoy.

Although some things have changed. When I swim I don't get coordinated as well as I use to.I most often veer to the left because my left side is my weak side and been damaged a bit more than before from the recent issues. Horse back riding I make sure not to have the horse with the most spirit. Funny thing I use to break horses.
Working out is a constant challenge with fatigue. I have been told for years now my fatigue is not related to my hydrocephalus. I hate to tell them all they are wrong.I can deal with pain better than I can the fatigue.

I want to spread the word about hydrocephalus and make people more aware of how common it really is. Most are born with hydrocephalus or contract a spinal infection that can cause hydrocephalus early in life. My condition was from doctor/nurse miscommunication. I my have still had hydrocephalus. You can have a hit to your head and swelling and spinal fluid over compensates to protect your brain. Recently becoming more popular is normal pressure hydrocephalus where as we age our body and bones shrink and can cause hydrocephalus. I could go on and on with causes. Like cyst and so many other things can cause this and it is most often happens to children born with other physical disabilities. 1 out of every 500 children are born with hydrocephalus.

Tuesday, July 7, 2009

When did tomatoes become poisonous?


While swimming a few weeks ago. One of the life guards was telling me of his disappointment and the daycare that recently set the garden out back. They were going to have to remove the tomato plant because they are poisonous.
I thought "what"? If the plant is poisonous what keeps the fruit it's self not being. Apparently there are guidelines for daycare and one thing they can not have is tomato plants. This was news to me so thought I would pass the word incase you have a toddler that likes to chew on plants in your garden.

Sunday, July 5, 2009

New flowers blooming

Besides my annuals I've got some flowers blooming that I set just last years. It's fitting that
the first to bloom was the beautiful lavender and white gladiola.

This red gladiola is not a true red it is more like a red-orange.
This peach and yellow makes me think of my mom she loves the
color peach. And this comes real close to the colors that my parents
use to have in their ketchen and dinning room.



Last year I thinned out my calla lilies so I am able to enjoy them all over my yard
and not just in one area.




Somehow I ended up with more white lilies that pink. There was
a good bit I did not get reset last year because of reoccurring surgeries.
Now I'm wondering if the ones I did not get reset were the pink.
The way they grow they will be replaced in just a few years.
There is still a good few to bloom so they may be pink too.




Saturday, July 4, 2009

Free Samples

While feeling bad the past week I have lost out on many new coupon sitings and events. But I have been playing with blogs this week and found a new blog and I am super excited to learn about the world of free samples.

Apparently suppliers like sending out samples to encourage their product and promote sales. I have recently met Brandie online and she has been giving me some trick to the under world of free samples. She also has a blog and I hope that many of you will take a look and visit her blog often. I have found some great give-aways there. I have added her button to my right of blogs and sites I use often. Also here is her address http://freesamplefreak.com/

Happy 4th of July

Yesterday Thankfully was the last day of my week long headache.
It still comes and goes but is not the nagging pain I had been dealing with.

The coupon inserted must have forgot it was a holiday so we got one insert this week of coupon from P&G.

I hope everyone is planning a safe and happy holiday weekend. We put up the We are closed sign yesterday evening and plan on not leaving all weekend. Daddy always has someone want to come and look at travel trailers last minute wanting to go camping with buddies of something. Forgetting that the bank closes for the holiday and so does Daddy's business.

With the gate up Pepper can play outside without worrying about a car rushing in the drive and I can sit out in my front yard without having to worry about getting sun in a halter top.

I promise to do better with my blogging since my headache is finally giving me a break. I have this week met some new bloggers and coupon addicts I hope to tell you about soon.

Thursday, July 2, 2009

Blue Spruce


Kinda sad this morning. Yesterday I was so excited to see my first gladiola blooming. It is a beautiful purple with a white tong. I was on my way in to get my camera when one of the old maid turkeys came up to feed so I sat down at my swing while she did her kinda chirp telling me all about her day. So I got distracted from taking my picture. As I was sitting there with Ester the turkey( what do you name your turkeys anyway?) I was just admiring my garden and looking around my front yard when I decided to move some bird feeders out of my blue spruce to other places since the birds don't seem to like my blue spruce.



I was not really looking for anything od just moving some stuff around steped back to look at it and noticed my spruce is sick. The entire top of it is dieing from the top down. I guess I had not noticed my tree having problems since it is near 25 feet tall now. I got it when it was around 3 feet tall.



My spruce marks a special time and a sad time in my life but a time I have marked with my first tree in my new front yard. I wanted something special to mark the year I set it. The year was 1996. So many big things in my life happened this years. The entire years was like a roller coaster. I don't remember the exact time line of events but there is so much of that year I'm not sure I would relive but the good things that happened I would not give up for anything.



My spruce came from my Papaw's farm that my Mamaw had sold to buy a home closer to us after Papaw died. We made a visit to the farm to see the new owners had set up green houses. I bought the blue spruce there. So it was from Papaws farm. And I chose a blue spruce because my momma loves blue spruce trees. So here is 2 of the many meaning. Plus my tree was to represent my first home, my very first front yard of my own. My first tree in my front yard. Also as I was setting up house keeping in my new house Daddy was building his shop where he sold truck for a short time and some travel trailers here and there who ever knew it would 10 years later be the new business of B & M Travel Trailers.



Some of the other things that happened this year was Cricket died. He was my first poodle. I had never dealt with death and I thought I was going to die with him. The hurt I felt was unreal. Cricket had been my play mate companion for 15 years. 3 weeks after Cricket died I met Kevin. I was still in shock from dealing with the death of my dear poodle dog so I missed so many signs of what I was getting into. I just wanted to be happy and make the ache in my heart go away. So I got into this really roller coaster relationship. I bought my house later that year and my spruce.



The boyfriend hated I had bought this house and made me even more crazy with grief than I had been before. We had been seeing each other 6 months or so. Broke up while I had found out he was seeing someone else. So we had broke up and I had found my house. I know my house was meant to be. I get signs through numbers. Don't think I am crazy just go with me here. My down payment on my house was 1,741.00... Here was my sign our home phone number was 1741. So I was certain my house was suppose to be. Just wish I had got a sign about the X like that.



Then the other major event that happened to me was my best friend died. Brian, I have posted about him before. I could not grieve properly because the creep I was trying to have a relationship with was jealous of Brian or telling me how I had messed up buying "My" house because he needed my credit to buy us a house for him. Oh I could vent on this DUDE!!! for days and write books and books.



After Brian's death Supermom and I became friends and were becoming pretty close but I would say I did not tell her of the craziness I was going through.



So this is all my tree represents to me. So many things. But now I'm trying to find out if it is dieing. So all morning I have been searching the internet finding all kinds of crazy things that could be plaguing my tree.