I'm allergic to Band Aids

Yes this statement is totally true. So I don't break out from head to toe in an itchy rash. Well, only with the latex ones.

But even the non latex get me. So I don't break out all over. I took off my non-latex band aid to swim. It decided to take skin and all. No it did not just feel like that it really did. It looked like band aid rug burn.

OH MY COORDINATED WATER!!! The entire 2 hours I was in the water it burned. I had sealed it with that antibiotic spray.

I should have expected this every time I have to have an IV the tape pulls my skin off then too like this but not this bad...

Harris Teeter "Super Doubles"

I drug through Harris Teeter yesterday to do "Super Doubles" Now that it is over and we are home I am glad I went.

We got some things for nearly nothing. Well I can't complain about giving $0.27 for Pert Plus shampoo.

We got $242.52 worth of groceries for $88.74.

I do often buy things when not needed as many of us call stock piling. In the winter months when my electric bill goes up and I'm looking for Christmas presents it is nice to know I can get away with just buying the staples and not having to spend out a big amount every week.

I also hit CVS and had a great coupon on protein drinks that we have a rebate for and also got extra care bucks back on.

If you don't watch your adds closely watch a blog like Southern Savers or I follow a bunch of others that keep up with the adds and extra care bucks. They also will match sales to coupons coming out in Sundays paper and tell you how to find other online coupons. Blogs like this do all the leg work for you. At Harris Teeter I look at it like we made $153.78.

Please I want off this ride!!!

I did not mean to get on this roller coaster. It really was an accident. I don't mean to sound ungrateful but I WANT OFF!!!

OK True story the roller coaster is me thinking I am feeling better then for some fool reason like this past month I was shaking and went on new medicine and now I have totally new problems and have to go through a lawyer and a judge and 3 doctors to figure out how to get off of it. In the mean time I am wondering how many other people are not really sick just having side effects from medicine.

Making some changes

Two weeks ago Monday I thought I hurt my back. Which years ago I hurt my back at work and from time to time will do something to make it flair up. This is nothing new. But it has never hurt this long.

Just a few days after I thought I some how hurt my back I started getting real achy. So to explain this I thought it was mostly coming from my back. As I start feeling aches more in my arms and legs I started stressing over H1N1 flu.

Yesterday I got kind of depressed and stressed out hurting so much with no reason why and got to brain storming with my mom about the Zonegran.

I think my tremors were from a diet pill I was taking anyway. I was anemic and having low sugar spells all the time. I got that straightened out by eating a high protein diet and checking my blood. It took about 2 weeks to get straightened out. I was having to eat about every 2 hours a small meals. Apparently with the diet pill I was starving myself but not loosing any weight. My body was in conservation mode. So my system was all over the place which the tremors I thought I was having was low sugar shaking from hunger. I still wonder why I did not feel hungry.

Anyway, Zonegran is alot of times perscribed for fybromalgia which helps to heal the nerves that have been damaged in the body from the disease. I have taken Lyerica which is often prescribed for this and it does some of these similar things to me.

I have some nerve damage but not in the same manor that fybromalgia causes. Mine is from surgery,brain tumor and hydrocephalus.

Yesterday evening I came in and decided to search for side effects of zonegran. I got to thinking that maybe I did not research it as good as I should since I had taken the Topamax and figured it was basically the same. I did not make it to far in looking and I found a good bit I had missed.

Fist major side effect "Back pain"...So now I'm wondering if my back really is hurt or it is the medicine. "Flu like systems"... I for sure feel like I have the flu. I can read on and see half of the systems I have had and had not thought of it all as a side effect. It also says can cause headaches. At first my headaches were doing so much better but just like the other stuff in the past 2 weeks I have had a headache. But my headache feels different so I am sure it is from the zonegran.

In the instructions it says it takes 2 weeks or longer to get fully in your system. I think that is why it took so long to see the side effects I have from it. I have trouble with a lot of medicines and have to debate the side effects to the usefulness of the medicine.

I'm going to go ahead and start stepping down off this medicine but will call my neurologist Monday to let him know.

http://www.drugs.com/sfx/zonegran-side-effects.html

Jaycee Dugard missing for 18 years

Kidnap Victim Jaycee Dugard Located After 18 Years
Written for the web byPosted By: Jason Kobely, Internet News Producer
Jaycee Dugard, 1991 (left) and age progression, 25 (right)
Jaycee Dugard, 1991

EL DORADO COUNTY, CA - The El Dorado County Sheriff's office is confirming that kidnap victim Jaycee Lee Dugard had been located in good health in the Bay Area.
Jaycee was abducted on June 10, 1991 from South Lake Tahoe. At that time, it was reported that a vehicle with two people inside, drove up to her and grabbed her.

The El Dorado County Sheriff's Department and FBI are planning to hold a news conference Thursday at 3 p.m. to discuss the missing person case of Jaycee Dugard.
News10 will carry the press conference live on News10 and news10.net.
Dugard's stepfather, Carl Probyn, told News10 last night that family members believe authorities found the now 29-year-old girl alive.

"It's an absolute miracle if it is her...can you imagine this after 18 years?," Probyn said in a telephone interview.

The amazing news of Dugard's return came after a Concord police officer confirmed to News10 that local agencies were investigating the claims of a woman who allegedly walked into a Contra Costa County law enforcement office Wednesday and said she was kidnapped 18 years ago.

VIDEO - 1991 - Search Continues for Missing Girl: Stacey Walters' Report; 10/05/91VIDEO - 1992 - Tahoe Remembers Jaycee's Disappearance One Year Later; Jaime Garza's Report; 06/09/92VIDEO - 1997 - New Arrests Offer Hope in Dugard Kidnapping: Deborah Pacyna's Report; 12/10/97

An FBI agent leaving Concord Police headquarters Wednesday night said the Bureau was involved in the case, but would not comment on any details of the investigation.
"There will be a press conference tomorrow," the unidentified agent told reporters. "We're working it."

Probyn, a contractor who now lives in the southern California community of Orange, said Jaycee's mother Terry received a call at her job with the Riverside School District from the FBI Wednesday afternoon.

Probyn said the agent on the phone identified himself and said, "We've got Jaycee." Terry then had a phone conversation with the woman authorities believed to be her long-lost daughter, a conversation that left Terry "positive" that Jaycee was home, Probyn said.

He said his wife thought Jaycee sounded normal and not like she was mistreated over the last 18 years. Terry said that "(Jaycee) remembered a lot," according to Probyn, who was in "complete shock that (Jaycee) is alive."

Terry Probyn told Carl that the FBI didn't get into where Jaycee was or who she was with for the past 18 years, but said "she was with some people and...they are in custody." Probyn said he had no idea about the identity of those "people."

"I told my wife I want those responsible to be taken down, no deals at all," Probyn said.
CHAT: Join local moms who are talking about this story on momslikeme.
Dugard was just 11 years old when she was last seen just 150 yards away from her home as she walked to her bus stop in South Lake Tahoe around 8:05 a.m. on June 10, 1991.
Carl Probyn said from inside his home, he saw a man and a woman in a two-tone gray, late-model sedan make a U-turn on Washeon Boulevard, then saw the woman in the car grab Jaycee and pull her inside.

Investigators at the time believed Dugard may have been taken across state lines into Nevada after her abduction. Despite at least one alleged sighting immediately following her disappearance, Dugard was not seen again -- until Wednesday.

Of the past two decades since Jaycee's disappearance, Probyn said, "It's like having heart surgery and not being sewn up. Your heart just aches."

Carl Probyn said the stress, pain and trauma of Jaycee's abduction destroyed the Probyns' marriage. The pair are separated, but Probyn said they remain friends, living 40 miles apart.
Probyn said Terry and the couple's 19-year-old daughter Shayna were flying to northern California Thursday morning to reunite with Jaycee.

Along Washeon Boulevard Wednesday night, South Lake Tahoe residents who heard about the developments in the case were hopeful these latest events would bring closure to 18 years of unanswered questions.

"I remember my sister was in (Jaycee's) class in the fifth grade when it happened," said resident Sara Esposito. "I'm just blown away."
David Watkins, who bought Jaycee Dugard's family home on Washeon in 1998, said the spectre of Jaycee's disappearance still lingers in the neighborhood.
"You hear about it every year. Someone says something...'What happened to her? What's going on with her?,'" Watkins said. "Maybe it'll put an end to everything finally."

UPDATE: One suspect has been identified in the case, click here to read the suspect's blog.
Created: 8/26/2009 6:51:50 PM
Updated: 8/27/2009 2:25:51 PM

Dermatologist visit

I would love to tell you I loved getting up this morning and going to this visit. I woke up my back hurting,my head hurting. I called my mom and try ed to reason with her why I needed to cancel this appointment. She disagreed no we need to go that spot has been there too long.

See this place here on my arm. Well pretend you do. It's been her forever. I thought it was a bug bit then a cyst. Now it is just ugly and sore and wont heal and go away.

Well Dr. Don't remember his name said oh yes we have to get rid of that. "It's too big and too deep." So I am expecting him to make another appointment so I can dread and worry and get drugs before he comes toward me with a knife or shovel or what ever it requires. I mean I have had some places cut off my back no problem. A few shots to numb. A few stitches and it's over.

BUT!! DO WHAT !?! FREEZE IT OFF "TODAY?" I'm thinking OK how does this work? He will run out get some ice. I look down a second and look back up... He has a freekin' blow torch coming toward me! I was was really thinking I bet this hurts. Ya know I was totally right. It hurt all three times. I'm thinking freeze my big toe that is burning and I smell flesh and I'm sure it is mine!!!...

So now my instructions are that it will blister and I can stick a needle with alchol on it in the blister. It is noted this will happen several times. So I am suppose to stick a needle in this frozen burn

Shunt

Parts of the Brain

Wondering....

Totally wondering why "the cat" ( she is "the cat when she is on my last nerve). Wondering why "the cat has to walk across my keyboard while I am typing. And I know everyone lives to get up everymorning for a fluffy butt kitty cat to swag her tail around my neck as she moons me.

So what I do is the one hand kitty move. She loves this. She it suddenly suspended in air as "Superkitty" actually it is more like limp kitty mommas moving me again. So now it is a game to land where she wants me and go back to the keyboard. Because I know she can not type without my help.

I guess she would say the keyboard kitty in my fault because I upgraded my computer and computer screen a few years ago. She would lay on top of the screen and grab for the carouser at different times. She could lay on top of my printer if not for all the books and couponing junk.

I put an old rug on the back of my chair which is where I send her when I do the one handed super kitty thing. But she totally has to be making eye contact with me.

Solution I guess I need a book shelf over my computer so super kitty can do her kitty trance.

Harris Teeter "Super Doubles" August 26,2009

Will end September 1,2009. They will double up to $1.98...

I have really been trying to get back into the couponing and saving money zone. I have been slacking since I have been feeling worse.

So yesterday I spent most of the day on and off going through my couponing blogs transferring them to my facebook. It takes so much time to roll through all the blogs I follow and then I could just kick myself when I miss something good. So with them on facebook I get the main title then can click on the body when I want more details.

A couple of weeks ago I went to walmart and saved $171.00 in coupons. Walmart does not double and does not carry all the grocery items I need but they do have lower prices that kind of evens out.

Harris Teeter...Totally love the store but have to so selective shopping until they have Super doubles or triple coupons. This is a place you really need to know the prices of your products. Plus they are also selective on the products they carry that I am looking for.

Funny dream

The past few days I have had Supermom on my mind with her Papaw passing so I guess it was fitting that I dreamed about her. It was not a great dream or anything just kinda funny.

Last night I had been downloading music off the Internet. Which I always get to thinking of how I use to workout all the time before I got sick. Which I really really want to get back into doing.

So back to my dream. I was working out in my living room which because of my balance issues I can't go by a routine of exercise. I have always and much more now had to make it up as I go along. Kinda like dancing in your bed room when no one is watching. I even close my curtains incase a wandering deer may look in my windows to see my crazy work out.

So in my dream I am doing the dance like no one is watching then look and see Supermom smile at me. With her husband and someone else. I have no idea who else was there but I was super embarrassed. I think my thought in my dream was "I forgot they were here"

I think this dream happened because my memory has been pretty shotty lately... But it was funny... I do remember thinking well my secret is out...

ABC's of me

Pick facts about you using your ABCs.

A - Age:34
B - Bed Size:full extra long...really hard to find sheet that are a thread count over most people IQ
C - Chore you hate:Folding clothes...cleaning... I know one day God will bless me with a man that loves to do these things... I'll cook if he will clean up after me...lol
D - Dog's name:Cricket-RIP; Patches-RIP; Pepper
E - Essential "start your day" item:tea... and something for this stupid headache...lol
F - Favorite color:purple
G - Gold or Silver:gold
H - Height:5ft 1 1/2 in... I have to fight for every inch I got...lol
I - Instruments you play(ed):I didn't
J- Job title:hydro peep
K - Kid(s):I only have puppies and kitties
L - Living arrangements:no people just fur babies
M - Mom's name:Momma
N - Nicknames:I don't think anyone told me to my face me nicknames...
O - Overnight hospital stay:Too many to count on both hands and fingers and toes...
P - Pet Peeve:socks and flip flops...which I really have issues with feet all together esp hair toes...ewww!!!
Q - Quote from a movie:It's too early for this question...
R - Right or left hand:Right
S - Siblings:nope
T - Time you wake up:usually when I really don't want to...
U - Underwear:most days
V - Vegetable you dislike:I use to be a vegetarian... I was much healthier
W - Ways you run late:try to be Early...when I start last it rushes my whole day
X - X-rays you've had:Too many to type.
Y - Yummy food you make:Have not cooked in a while... I enjoy cooking when I have someone to cook for
Z - Zoo favorites:Big Cats

No news is good news...

I feel kinda bad I don't have the latest headache news happening. But honestly the headache just has not been happening that often for me. It feels strange. I do still have them but it is doing really well. I guess that is what the Zonegran is suppose to be helping.

I am i=getting terribly irritated doing my Mel Tillis impression all the time. Stumbling over words not being able to complete my thought. It was quit funny Supermom's daughter H finished my conversation for me last night. I'm not sure if her mom told her if it was the drugs but I was glad she helped me out. Because the words were not happening.

Poor Pepper has learned to answer to "kitty kitty" and Ginger responds to "good boy." I

I'm not too sure how many people I want to have to tell I am basically stoned so this headache free zone may have to do something different. It is funny most people have to be able to read minds these days to have a conversation with me...lol

Someone elses hurt can still effect you

Tonight I visited a friend at the funeral home where her relative had died. All the way there in the car my mom cried remembering different people in our lives that had passed.

She told me about when her dad died her Uncles took turns staying with his body at the funeral home so someone would always be with him. Apparently then families did not think you should leave your loved ones alone.

I was not having an excellent balance day so I was walking with my cane. Her 4 year old looked at it and ask why I was walking with it. I gave a simple answer "So I wont fall." And She replied "Oh Ok" She grabbed my hand as usual an took off to show me the way to follow her mom. I love how kids don't see handicaps as a barrier to not being able to be your friend.

Hydrodinos

Check out a new hydrocephalus support group for those us us 35 and older. My friends at hydrodino's discuss topics about not being able to find neurosurgeons that treat adult hydrocephalus and the challenges that comes with understanding adult hydrocephalus.

Supermom wants to know...

Kissed any one of your Facebook friends? --- yes...
do you want me to tell you who and how many...
Been arrested? --- no...
Kissed someone you didn't like? --- no
Slept in until 5 PM? --- no
Fallen asleep at work/school? --- yes
Held a snake? --- no... well I have with the head of a shovel if that counts...
Ran a red light? --- yes...I thought it was meant for the other lane
Been suspended from school? --- no...I was a good girl
Experienced love at first sight? --- yes, that did not pay off...
Totaled your car in an accident? --- yes... Camaro hit rock wall
Been fired from a job? --- no
Fired somebody? --- no
Sang karaoke? --- yes
Pointed a gun at someone? --- no
Done something you told yourself you wouldn't? --- yes
Laughed until something you were drinking came out your nose? --- no...I'm a snorter
Caught a snowflake on your tongue? --- yes
Kissed in the rain? --- yes
Had a close brush with death (your own)? --- yes... but did I nearly die from a brush...no... that is confusing...
Seen someone die? --- yes
Played spin-the-bottle? --- yes
Sang in the shower? --- yes
Smoked a cigar? --- no
Sat on a rooftop? --- yes of a dog house... what can I say all dare devil
Smuggled something into another country? --- no
Been pushed into a pool with all your clothes? ---yes
Broken a bone? --- no
Skipped school? --- yes
Lied to avoid a ticket? --- no only been pulled over once
Ridden in a helicopter? --- nope
Shaved your head? --- had parts of it shaved...Blacked out from drinking? --- no...I was always too busy being everyons bestest friend...lol
Played a prank on someone? --- yes
Hit a home run? -- no
Felt like killing someone? --- yes...but the jail time was not worth it'
Cross-dressed? --- no...
Made your girlfriend/boyfriend cry? --- yes
Eaten snake? --- no
Marched/Protested? --- no
Had Mexican jumping beans as pets? --- no
Puked on an amusement ride? --- no
Seriously & intentionally boycotted something? --- no
Been in a band? --- no...pretended to be a groupie so friends would not feel unloved...
Knitted? --- yes
Been on TV? -- yes
Shot a gun? --- yes
Gave someone stitches? --- no
Eaten a whole habanero pepper? --- no
Ridden a surfboard? --- no
Had surgery? --- yes
Streaked? --- yes
Taken by ambulance to hospital? --- yes
Passed out when not drinking? --- yes
Donated Blood? --- no...they wont let me
Grabbed electric fence? --- no
Eaten alligator meat? --- no
Eaten cheesecake? --- yes
Eaten your kids' Halloween candy? --- I don't have kiddos
Killed an animal when not hunting? --- yes I grieved over my fish for weeks...
Peed your pants in public? --- yes...thank goodness they were dark
Snuck into a movie without paying? --- no
Written graffiti? --- no
Ever loved someone you shouldn't? --- yes
Think about the future? --- yes
Been in handcuffs? --- no
Believe in love? --- yes
Sleep on a certain side of the bed? --- yes

Dr. M check up

Yesterday I took my first trip to Charlotte to see Dr. M since December of 2008. This is the longest I have gone with out having to beg for a visit to tweak something. I had a CT and everything looked good. Things had not seemed to have changed much with my vents from the programmable shunt to this non programmable. But I can really tell a big difference in not having as many or as sever of headaches and no dizzy spells.

I had not forgot but I had kinda forgot how hard the trip to Charlotte was on me. Riding I was achy and grumpy. My back hurt. Last night my back hurt and I had a delayed elevation headache. But then also it started raining last night.

Today I am still sore and achy and got the headache and grumpy.

While waiting to See Dr. M a toddler took to me. Beautiful blond hair,blue eyes. And she had a hand maid dress on I thought was unusual in this off the rack world. But with time being limited. I wanted to ask about the scars I saw on her head. Which still had some scabs on them. It was 2 different scars both about a finger tip apart on top of her head but both circled her face down around behind her ears.

She had come to me and holding my hands and I suddenly felt sick and weak when her parents told me they had been on vacation when she got hurt Her skull was crushed and the front part had been taken out and was to be replaced at a later time.

She was walking and pointing out the butterflies on my shirt when she was called back. Oh how I would love to know more about this 21 month old little girl.

I know she has 4 older brothers and sisters. They were on vacation in Florida. So I wonder if a ride hit her in the head. I thought of a fall but I thing it may have to be something pretty forceful to crush her little scull like that.

I hate not being able to know more about this little girl. My mom reassured the parents that Dr. M was an excellent doctor. I wish the little girl and her parents luck.

We are having a lazy Sunday... Pepper as you see is sitting here with his eyes closed...
And yes that is my toe that Ginger is holding onto...lol

Pepper is still having troubles

Took Pepper for another visit to the doctor about the fissure on his eye. We are starting the third round of steroid eye drops.

The hole has healed but it still has an indention ans scar tissue. He did see a different doctor this time that wants him to stay on the drops longer.

I have been giving antibiotic and steroid drops at different times.This eye is being a bugar.

We already took him several years ago to Charlotte to have cataracts taken off. To have him loose his sight over this would really make me ill. And to have totally no idea what caused it.

I wondered it him and Ginger played she could have scratched it but the doctor thinks it is really to hard to say. I think if it had been Ginger Pepper would not want to play with her out out fear of her scratching him again. Plus I do clip the Sharp ends of Ginger's claws.

Reality

Today reality is...I feel super tired...I am usually goofy when I feel bad I am just to tired to feel goofy.

I found out a few days ago I had been taking a medicine that was messing up my blood work. So I have bee anemic and had low sugar for nearly a year or more now. I have been off of it since Sunday and I just feel terrible.

My doctor said it may take a couple of weeks to straighten my blood out. But this may be the reason I have been fatigued for so long. I have blamed it on my hydrocephalus. So will see.

Note to Self:

Check the sheets for thong (possibly suggestive) unwear in sheet before house cleaner ...(Preacher's wife) house cleaner arrives!!!

not that this happened...just encase it ever did...

Zonegran week 2

I have to say adjusting to zonegran has been pretty easy. I do have some side effects of fatigue but I had that before so it could be I just still have fatigue.

My headaches are doing better on the zonegran but I do have a light weather Doppler headache right now. I wonder if I will adjust anymore to it.

I was thinking this morning about running into someone I use to hang out with and to make a long story short we said hey, how you doin? After I told her I had been sick I have not heard a word from her. This is not unusual. Many people can't deal with illness. I joke it off that maybe she was scared my brain tumor was catching.

Anyway, I remembered a friend in school (we were just 8 or 9) trying to be compassionate) show me she understood what I was going through. Which I did not understand so why should she but she was trying anyway. But this has been a fond memory for years.

She was telling me she really understood what I was going through because when she was little she had had a brain tumor in her foot.

Triple Coupon event

Harris Teeter is having triple coupons August 12 through August 18

I know, that I know, that I don't know

Apparently I know I've got old... I thought I was kinda still cool cause I was keeping up with the 11 year old lingo of my cousin.

But at the pool when a 15 year old was telling about her tattoo I did her her say henna which I thought she meant as "Hanna"

Number one I thought I can't believe your parents would sign to let you get a tattoo. Then I saw it and thought... "Oh my goodness!!!" That looks nothing like Hannah Montana!!!

Then teen goes on to tell about how henna can go on your hair... OK ...Yea... I got old...

Having a bad hair day...

Well, that could be a bit of a fiblet. Actually I am having a no hair day. I have been real quiet since my last hair cut just hoping to not be out in public. You see. I got a bad hair cut. It's not really bad. It would look great on any little boy. Just not on me. I like my spunky little do and this is making me feel like a little dude.

I know it's just hair and it will grow back but it is about to drive me nuts. It has been over 2 weeks and I think it has gotten shorter. It does not help that most new hair dressers don't understand what I mean when I say I want my hair notched.

Purpose in life

I wonder if other people ever wonder about their purpose in life. I have wondered about it all my life from time to time. I feel we all have a reason to be alive. A reason to be part of life. We are not here just to take up space.

I also feel is is our job to try and find what pulls us in life. What seams to consume your life not to take over but to be able to make a difference. Maybe it is to help someone or make a difference in a cause. You may do it without even knowing it.

I have struggled with this issue for several years because one I really had no answers to so many things that had happened to me being sick as a child. I have never had the want to be a mom like all my other friends did. I love children. And I may one day be blessed with a child but I never had the "I gotta have a baby itch" like most women. I thought something may be wrong with me not having that gotta have a baby want like other women.

But with being sick the past few years it would really have made it hard on kids not understanding why I was sick and all the craziness that went with it. Then not understanding myself.

I have come to wonder more if maybe having the hydrocephalus is part of my purpose in my life. Maybe my story can help to keep someone else from going through some of the mistakes I did. Maybe I will be remembered because I some how made a difference.

Yesterday was a kinda crazy day. Not crazy bad just crazy busy. And with all my medical issues my energy does not quit hold up the way it should nor do I mentally. So I really slept good last night.

On Monday, Wednesday and Friday I try to do a swim class at the YWCA. Which I has been doing for over a year or so now. It is a medium level exercise where all the women in the class have some sort of medical problem. We are able to exercise at our own pace and not over do ourselves. The Y provides steps to get in and out of the pool which have been a blessing with my tremors lately.

Yesterday was worse with my tremors. Actually I felt like I had low blood sugar all day yesterday. I wonder if it might be from going up on the zonegran. I have not had much of any side effects going up to the 200mg dose. Which I am not complaining at all.

Lately I have been missing my therapeutic horse back riding. I may look into calling them later when it cools down a bit more about riding again. But it is hard enough to make it to swimming with the feel bad days and doctor appointments. This week I only got to swim one day. So I may need to think this over a bit more.

Day 2 of 200 mg of Zonegran

I'm not sure if this was a side effect or not yesterday. I was working on a blog post and Supermom called. I totally lost all train of thought. Even though I was telling her what I was posting.

While talking to her I must have got quiet because she ask me what I was doing. It was funny because in all honesty I was sitting there trying to remember what I was doing.

I did get the post done after redoing it 3 times. First I posted and thought I bet I did not do spell check. So I did that and re post. I read it and it sounded like I was drink so I edited again And re post. I reread once again and had made it worse than ever. So I did it again. Each time it posted on facebook and I'm sure twitter too...I know people that read my blog think I an nuts and the ones that don't have just blocked me by now...lol

Yesterday I had boost of energy on and off through the day like a happy feeling would come over me. I know it must have something to do with the Zonegran. I think it may be helping my energy some although today I am just beat.

I think My mom is having side effects from my medicine. (I say this in a joking manner) But since I have been taking it she has had stomach problems, we went to lunch yesterday and she said it tasted od and I can be talking about something and she will be totally clueless.

This morning I told her Stacey was sick(the lady that comes and cleans for me) She said Stacey K.? Meaning my friend I use to work with. I thought what? It took her a second and she said, Oh!Oh!

Last night I had a super conversation with a friend that has been taking zonegran for a while now and it has give me high hopes that it will help me. She has migraines. I have mentioned this medicine to another friend that has constant migraines and with it helping G I wonder if it would help her too.

The more research I do on zonegran the more I find it is being used for multiple sclerosis and neuropathy. The way I read on it I think it helps to heal injured nerves and nerve pain. So I am wondering if it could be used for fybromalgia and other similar disorders.


Today I do feel tired but not bad. I can still feel the low sugar feeling and my left arm is having some coordination issues. But I was tremoring all over and felt like I was having a severe sugar low.

Part 2 Zonegran

I had debated all week to go up to 200mg of the zonegran because everyday I thought I was having some sort of side effect. But the thing is the side effect I though I was having from the medicine that day would only last that day and sometimes not even all day.

So I went ahead and went up another dose. It is time released so it will be a bit to see if I will have any reactions from the new dose.

I do think the medicine is helping the tremors I have been having. Which is a relief. I have been so worried that I was going to have to live with that crazy feeling if I could not adjust to the zonegran. I have read it take 2 week to fully get into your system. Which is good because as of yesterday I was still having that craziness happening.

When I first started having the tremors I was scared to death I was having seizures, I was diabetic or it was the shunt. My headache has not been worse so I ruled out the shunt. My neurologists saw me last week and ruled out seizures.

Yesterday I saw my family doctor and was telling her about everything. She is so great. She will tell me up front that my neurological problems are over her head. First thing she ask is I hope I'm not the only one of your doctors that knows about this. (The tremors?) But she did take blood to check that to make sure of all that is ok.

Anti-syphon Devive

The anti-siphon device

An anti-siphon device is a pressure regulating device, it responds to atmospheric pressure which is transmitted through the skin, it is active only when there is a negative pressure exerted due to the vertical position of a child, and the resultant siphoning. Anti-siphoning devices were developed to be added to the standard shunt just below the shunt's reservoir. When the pressure within the fluid column of the shunt drops to below atmospheric pressure (as is the case with siphoning), atmospheric pressure transmitted through the skin pushes a diaphragm down to close the fluid passage way and block further flow of CSF through the system until such time as the pressure within the ventricles climbs back to above atmospheric pressure. When this occurs, the diaphragm is pushed back open.

A variation, on the anti-siphon device, is the Pudenz-Schulte Delta valved shunt which has a valve on it that resists drainage through the system when pressures within the system drop into the negative range.A siphon valve in that it does not need to perceive atmospheric pressure to work thus encasement of the valve by scar tissue does not cause its malfunction as opposed to the anti-siphon valve where this has been reported.

The Cordis's Orbis-Sigma valve, offers a variable resistance to flow as a function of variations in pressure within the ventricles. As pressure increases within the ventricles, the resistance to flow increases until pressures reach an abnormally high range where to valve drops its resistance to flow to zero to allow decompression of the dangerously high state. This design is meant to avoid overdrainage due to transient, normal rises in pressure within the head such as happen when an individual coughs or sneezes.

The Codman Medos adjustable shunt has a pressure differential valve whose resistance can be altered using a magnet field transmitted through the skin. Thus, the valve settings can be changed during a routine office visit avoiding any surgery. Reports from Europe have stated that some patients have benefited from having this shunt. Clearly, siphoning occurs with this system so it is unclear to what degree the feature of valve adjustment will be of benefit.
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ref:http://www.geocities.com/TimesSquare/Dungeon/6214/antisiph.htm

Check it out

My dear friend has a button for her page. We will call her Supermom. I just added it to my page. If you remember she is the one that got me started blogging. Which I am still not excelling at but I do enjoy.

Also check out my other friend Renee's sight from Candy Stick Lane. It has a new look. She also needs a button so I can link my friends to her page(hint hint).

I'm still going through the process of getting use to this new medicine for the ones wondering why I have not updated any good hydro info.