Pepper's coming Home!!!!!!

I just got the call from his doctor his insulin level has stayed level all night. He is resting now and actually ate some for them this morning. Pepper is very shy when it comes to eating for strangers. So this was a really good thing. They took the insulin drip out and just gave him half a dose of his usual.

Today is a holiday so I don't figure to hear about the appointment for my test today. I have found a good combination of pain medicine to get me through until I hear from the doctor. All weekend I have had to double up on meds because the dizziness and head rushes were just too bad. I jumped up this morning because I heard the phone and did not have a head rush. So this is a very big improvement.

I know there is still a problem with the shunt. But it if nice to not have to sit up to sleep and take medicine to be able to move or even open my eyes. My head hurt so yesterday my eye balls are sore and tender.

I hope everyone knows I'm not blogging this to feel bad for me I am bloggin my pain because I know other hydro peeps have my pain. I also have several friends with other invisible disabilities with pain. And for my friends that don't know a lot about hydrocephalus.

Update on pepper

His sugar never has dropped extremely low but they went ahead and started him on a IV drip to keep his sugar regulated. They have him in ICU and may keep him for 24 to 48 hours.

I have doubled up on my pain medicine I really don't want to be on the roads with it being a holiday plus I am sure the ER will be packed. But the way my headache is acting
it is going my headache is not going to wait patiently.

Is it Friday the 13th? Did someone see a black cat?

Yesterday I had one really bad head rush that scared that scared me to death. But it eased up and was ok. But its back only I walked into the kitchen to get something to drink and every time I moved my head way like I had this major rush of pain. It comes in waves every time I move my head. I have a bonus I now I have the fetal position headache.

I called my parents to come help me feed and doctor my babies while being stressed with me hurting and Pepper pacing someone drove up. Daddy ran out to see who it was my mom ask if she needed to come finish feeding Pepper I said no because I knew it hurt her to bend over to help him. I went in and saw his insulin out on the counter so I gave him the shot. Daddy came back in and I found out that daddy had give him his insulin already.

So I called his doctor and had to rush him to an after hours emergency hospital. He will be kept for the next 24 hours I don't know what to do without my Pepper here
I feel like I need to be Charlotte bound but I can't leave and my Pepper not well:(

Still waiting...

I am suppose to be scheduled for a shunt gram and I am still waiting to hear from the office when they can get me in. The shunt gram has to be done by Dr. M so it has to be scheduled around surgeries.

I'm going to try to find information on the shunt gram to describe it better. Die is put into the shunt and tracked as it fl owes and is released by the shunt to make sure the shunt is working and releasing fluid at the right times.

My headache today is not responding to pain medicine at all. So my head feels like it is going to explode.

Played phone tag for 2 days

Dr. M's Office called back after I had explained how bad my fatigue was now. I was walking on the treadmill a hour every day and 3 times a week I was swimming and doing water aerobics. Now I am exhausted with the crazy headache.

What day is today?

I'm blogging from my blackberry because 1. I just figured out how to do it. 2. My internet is down and 3. Most important I want to log this crazy headache I have going on. This is my crazy mind I don't like blogging about my pain because I don't want people to feel sorry for me. This is suppose to be me. I am learning from my blog and many other connect and learn from my having hydro.

I'm wondering if this is going to be another Monday. I woke up at 5:30am I have been having soreness in my neck and around my shunt area. It feels sore in the muscle of my neck and when I move my head I can feel pulling like scar tissue tenderness and nerve sensitivity.


I want to describe my headache a bit more. It is a pressure feeling kinda tension to my forehead all the way to the crown of my head. It feels like to touch my head I could nearly peal the pain off the top of my head.

Last headache was the bruised headache. It made my eyes even feel bruised. Actually my entire head felt bruised.

Topamax test

I'm packing and going over in my head everything that could be making me feel horrible. I went up to 150mg on my Topamax it has not been long so I am going to go back to 125mg. and see if I see any change. But I'm still packing. If this headache spikes I'm in the car on the way to Charlotte...

Worried!!!

Today is not starting out so good. I have a headache. Which I have had since the bad headache spell last weekend but it is starting like id did last Friday. I'm noticing when I bend over a bit it makes the headache worse. I call it a head rush. Because it is a rush of pain. I'm feeling all nervous now.

So what am I doing? I'm packing and praying...

First blog from blackberry

I knew I could blog from my phone I just had not tried it yet. I really wish I had blogged each day I was in the hospital but I was in so much pain I hay have scared many with my words. Ever since I the bad headache I have been extremely fatigued which is worrying me that something did happen to the shunt and I am now over draining because I am also having more than normal headache. At least I'm not having the fetal position headache I had
Last weekend. This was my first blog by black berry hope you can read it.

I still have hydro

One Week a go today I was in Asheville emergency room thinking I was going to be soon having surgery for a revision. It has been a long week that is why it has taken me so long to blog about what happened.

Friday I though I had a headache from water in my ears which I have had before and I put some swimmers ear in my ear in to dry up the water. I have blogged on this before. It is a crazy headache. The headache did not got away so I put the treatment in again. Still thinking it was water. The headache was getting worse though. Every time I tried to move my head would pound. I was nauseated and dizzy.

Saturday I could no longer lay down in my bed so I gave in and was rushed to Ashevilles emergency room. Their CT scan showed I had slit vents and they suggested I see my surgeon as soon as possible in Charlotte. So when I was discharged from Asheville ER we got on the road to Charlotte.

As I write this it seems kinda simple now but I was screaming in misery in the fetal position for 36 hours during this time. I made a few texts to my niece and friends to keeps them from worrying but I was begging for surgery. I was begging to be knocked out. I have a high tolerance for pain but I could not take it. I had my Momma crying because I was hurting so bad.

I was admitted to the hospital in Charlotte my surgeon was going to do a test because he did not totally agree with Asheville's CT he had me scheduled for ICP monitoring. Then for some reason I broke out in a sweat right before I was going to my room for the night. And I fell asleep. The first sleep I had in days.

A week later I still have more than normal headaches and I have been really tired all week. I don't know if I had a virus or a blockage that past on its on. I'm just happy there was no surgery.

My friends were asking for prayer request my niece was asking for prayer request, it really got me when she told me the Little girl she had not been getting alone with was praying for me.

Somebody shoot me now!!!

I woke up thinking I felt ok... Not hurting too bad. It seemed like the usual headache. I rolled over to my pillow beside me to get my blackberry which made me turn my head then THERE IT WAS!!!!! That please shoot me to put me out my misery (don't kill me because I don't want to die just put me in a coma until this stupid headache passes) pain. I call it the bruised headache. Because it feels just like the inside of my head is bruised.

I can't believe I dealt with these headaches for so many years. I'm just so thankful to know it will go away in a few days. I remember begging surgeons to try something anything to just help the pain. I hope no one ever has to deal with the issues I did. I'm just glad it was me and not someone else.

I guess today is another day of not getting on the treadmill. I feel so guilty not being able to work out. I'm wanting to loose this weigh I've gained the past few years so bad. Ive got a good jump start on it. I've lost 32 pounds so far. But I have had to hold my bed down for the past few days is not helping the cause any.

It's another day of the dreaded headache

I really took it for granted that my headaches were doing so good. It is crazy that something as simple as a dentist appointment can shake me back to reality. I woke up again this morning first thing reaching for crackers and pain medicine because the pain was so bad I could not even open my eyes.

It hurts to move. It hurts to think. It hurts to think about thinking... But things were so much worse when I had the programmable shunt. Everyday was like this. Now I just have days like this if I had had to bend over and work in my garden or been in the dentist chair for a long period of time. Taking down the Christmas tree I think was the last time I had a bad time like this.

I'm spending quality time with my bed, Pepper, Ginger and my true love my dear blackberry

Maybe I spoke too soon

Tuesday I had a dentist appointment and during the visit I thought I did fairly well. Bu it was the next day I realized my brain was not normal. I had a headache and was depressed. It did not click in my head what had happened.

Thursday I had to go back, well Today. I felt terrible. My nerves were on edge, I am just so depressed. My head hurts. that crazy bruised feeling.

Then it hit me. It was the dentist visit that caused this. Laying in that stupid chair upside down has caused my head to feel bruised... Real Nice!!! Thanks Allot!! Doc!!

Sorry I've not blogged

I just have not had any issues happening which is the strangest feeling. I recently saw my neurologist he is very pleased that my headaches are not as bad and upped my Topamax to 150mg. since it seams to really be helping. He was very pleased to know it was also helping my nerve pain and aches. Which in turn my fatigue is becoming much less.



What I am doing day to day now is working on building up my strength still. I still have to remember my last surgery was just November 2008. I'm walking on the treadmill and swimming now.



I'm also able to make plans with my friends without fear of canceling because of a headache or being sick. I forgot how much I missed having a social life and spending time with my friends. I'm meeting new people and having fun.



I'm trying to get back to doing things with my sister and going to church. We both need this.



I hate to blog about my personal life but hydro is not controlling things now and it is really nice. I still have headaches but they don't cripple me and stop me in my tracks as much...